Kehitysvammahuollon tietopankki
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Parker, James N. (Editor) & Parker, Philip M. (Editor): The 2002 Official
Patient's Sourcebook on Fragile X Syndrome. Icon Health Publications 2002
Product Description:
This book has been created for parents who have decided to make education and
research an integral part of the treatment process. Although it also gives
information useful to doctors, caregivers and other health professionals, it
tells parents where and how to look for information covering virtually all
topics related to fragile x syndrome (also FRAXA; Marker X Syndrome; Martin-Bell
Syndrome; X-linked mental retardation; X-linked Mental Retardation and
Macroorchidism), from the essentials to the most advanced areas of research. The
title of this book includes the word official. This reflects the fact that the
sourcebook draws from public, academic, government, and peer-reviewed research.
Selected readings from various agencies are reproduced to give you some of the
latest official information available to date on fragile x syndrome. Given
parents' increasing sophistication in using the Internet, abundant references to
reliable Internet-based resources are provided throughout this sourcebook. Where
possible, guidance is provided on how to obtain free-of-charge, primary research
results as well as more detailed information via the Internet. E-book and
electronic versions of this sourcebook are fully interactive with each of the
Internet sites mentioned (clicking on a hyperlink automatically opens your
browser to the site indicated). Hard-copy users of this sourcebook can type
cited Web addresses directly into their browsers to obtain access to the
corresponding sites. In addition to extensive references accessible via the
Internet, chapters include glossaries of technical or uncommon terms.
Linkkejä:
Fragile X-oireyhtymä13.3.2005