Kehitysvammahuollon tietopankki
 | Kirjaesittely |
Weber, Jayne Dixon (Editor): Children with Fragile X Syndrome: A Parents' Guide.
Woodbine House; 1st edition, 2000
Product Description:
Fragile X syndrome is believed to be the most common genetic cause of mental
retardation, even more common than Down syndrome. It can result in a wide range
of developmental delays, learning disabilities, and physical
characteristics-which all tend to be more pronounced in boys than in girls. At
last, there is a comprehensive book on fragile X syndrome for parents. The first
and only book of its kind, Children with Fragile X Syndrome provides a complete,
sensitive introduction to fragile X syndrome, an inherited, genetic condition
caused by a mutation on the X chromosome. This new guide is written by renowned
professionals and experienced parents, who offer an in-depth look at the issues
and concerns affecting children and their families. It covers: diagnosis;
parental emotions; therapies and medications; development; early intervention;
education; daily care; legal rights; and advocacy.
With recent breakthroughs in research and effective treatments, therapies, and educational strategies, the future of children with fragile X syndrome is more promising than ever. Now parents and families have this indispensable guide as a source of up-to-date information, answers to their questions, and support from people who know about the challenges of raising a child with fragile X syndrome.
Linkkejä:
Fragile X-oireyhtymä13.3.2005